Accelerating pediatric hodgkin lymphoma research: the hodgkin lymphoma data collaboration (NODAL)
Kirk D Wyatt, Suzi Birz, Sharon M Castellino, Tara O Henderson, John T Lucas, Qinglin Pei, Yiwang Zhou, Samuel L Volchenboum, Brian Furner, Michael Watkins, Kara M Kelly, Jamie E Flerlage- Cancer Research
- Oncology
Abstract
Data commons have proven to be an indispensable avenue for advancing pediatric cancer research by serving as unified information technology platforms which, when coupled with data standards, facilitate data sharing. The Pediatric Cancer Data Commons (PCDC), the flagship project of Data for the Common Good (D4CG), collaborates with disease-based consortia to facilitate development of clinical data standards, harmonization and pooling of clinical data from disparate sources, establishment of governance structure, and sharing of clinical data. In the interest of international collaboration, researchers developed the Hodgkin Lymphoma Data Collaboration (NODAL) and forged a relationship with the PCDC to establish a data commons for pediatric Hodgkin lymphoma. Herein, we describe the progress made in the formation of NODAL and foundational goals to advance pediatric Hodgkin lymphoma research.