Transition to Adulthood for Children Who Experienced Acquired Brain Injury: Lessons Learned from a Clinical Program for Children and Adolescents

Background: The purpose of this paper is to describe lessons learned from a clinical program that was developed to serve adolescents who experienced ABI in childhood during their transition to adulthood by providing insights to achieve good health and assessment of needs in both healthcare and educational/career areas. Methods: Participatory Action Research methods were utilized for program development by collaborating with focus groups of teen participants and stakeholders following each year. Activities were devised based on best practices for cognitive rehabilitation, direct instruction, and practice of cognitive and metacognitive strategies, technology use, peer coaches and incorporation of multiple stakeholders, including family members. Results: We learned the importance of technology utilization, completing surveys of vocational interests, peer coaches, and post program follow-up to better understand both healthcare and career needs of adolescents who experienced TBI and are transitioning to adulthood. Conclusions: Adolescents who experience a childhood ABI benefit from education about the injury effects, technology use for self-management, peer coaches and connection to both healthcare and career opportunities following high school graduation.