DOI: 10.3390/tph1020013 ISSN: 3042-8181

Sociodemographic Characteristics, Research Roles, Training Needs, and Perceived Barriers Among Individuals Engaged in ACB Research and Data Governance in Canada

Josephine Etowa, Akalewold T. Gebremeskel, Amos Wung Buh, Egbe B. Etowa, Michelle Sraha-Yeboah, Apondi J. Odhiambo, Charles Daboné, Doris M. Kakuru, Francisca I. Omorodion, Anita Brown-Johnson, Glenda Muzenda, Amoy Jacques, Jude Mary Cénat

Background: Race-based data collection and governance remain inconsistent across Canadian health systems, limiting the visibility of African, Caribbean, and Black (ACB) communities. This paper presents a data profile of people working in or alongside ACB-serving organizations in Canada. Methods: A national cross-sectional survey captured sociodemographic characteristics, organizational affiliations, research roles, perceptions of data governance, training needs, barriers to participation, and self-rated research capacities of individuals engaged in ACB research and data governance. Eligible participants were individuals engaged in research, evaluation, data collection, data administration, or related activities in ACB-serving organizations across Canada. We conducted descriptive analysis. Results: Among 384 respondents, 45.8% lived in Ontario and 23.7% in Quebec. Most identified as female (72.1%), and 59.9% held a bachelor’s degree or higher. Many reported involvement in data collection (48.2%), data analysis (41.7%), and data management (41.4%). Training needs were frequently identified in cultural competency (48.7%), research methodology (44.3%), and data analysis (44.3%). Common barriers included lack of representation (46.1%), language challenges (41.4%), historical mistrust (37.5%), and concerns about data sovereignty (37.5%). Confidence was highest for data collection (56.4% rating 7–9) and lowest for securing research funding (34.8% rating 1–3). Conclusions: This data profile provides foundational evidence to support equitable, community-aligned data governance policy and practice within ACB-serving organizational contexts in Canada.

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