Qualitative study to explore the employment experiences and perspectives of women living with multiple sclerosis
Filiz Dilek, Aysun Ünal, Suzan Yıldırımçakar Sıylı, Kardelen Karaçor, Bengü AltunanBackground
Women living with multiple sclerosis (WwMS) often face significant employment challenges due to the intersection of gender roles, chronic illness, and workplace demands. These challenges can lead to social isolation, economic dependance, and reduced quality of life.
Objective
To explore the employment experiences, needs, and expectations of WwMS, focusing on structural and psychosocial factors influencing job retention.
Methods
A qualitative study using a descriptive phenomenological design was conducted. Semi-structured, in-person interviews were held with 20 WwMS who were actively employed. Data were analysed using Braun and Clarke's six-phase thematic analysis.
Results
Four major themes emerged: (1) Willingness to share the diagnosis, (2) Willingness to work to be involved in life, (3) Social isolation and social support, and (4) Expectations and suggestions from employers. Participants described stigma concerns, emphasized the role of employment in identity and self-worth, and highlighted the importance of both family and workplace support.
Conclusions
Employment is not only a financial necessity but also a psychological and social anchor for WwMS. Inclusive workplace practices, flexible conditions, and greater societal awareness are needed to support sustainable employment.