Psychosocial adaptation in everyday life after intestinal transplantation
Anna Brantmark, Anna Forsberg, Annette Lennerling, My EngströmAbstract
Introduction
Intestinal transplantation is a rare and complex intervention for individuals with irreversible intestinal failure. Due to improved outcomes, attention has shifted towards patient-reported experiences, including well-being, functional ability and quality of life. However, little is known about how recipients adapt to everyday life, particularly in terms of their ability to engage in meaningful daily activities, as reflected in occupational gaps. The aim of this study was to examine occupational gaps in relation to adaptation in everyday life among adult survivors of intestinal transplantation, with a focus on physical and psychological factors.
Methods
This cross-sectional study included the total population of adult survivors of intestinal transplantation treated at a single transplant centre serving patients from two countries. Data were collected using both generic and transplant-specific questionnaires.
Results
Participants reported a median of five occupational gaps. Those with fewer gaps reported more favourable outcomes, including lower symptom burden, lower levels of fatigue and psychological distress, and higher self-efficacy. Fatigue was common and closely associated with emotional distress and lower self-efficacy.
Discussion
These results emphasize the importance of person-centred, interdisciplinary care that addresses both physical and psychosocial needs. Promoting engagement in daily activities may support adaptation in everyday life.