Patient-Reported Outcome Measures (PROMs) for Measurement-Based Care for Patients with Chronic Illnesses: Protocol for a Systematic Review
Fakhriyya Aghabayli, Sadia Ahmed, Monica Cepoiu-Martin, Sabrina Adam, Diane L Lorenzetti, Lauren Verwaayen, Haleema Yousuf, Maria-Jose SantanaIntroduction
Measurement-based care (MBC) is a framework supporting the systematic and repeated use of standardised outcome measures, including patient-reported outcome measures (PROMs), to improve communication between patients and healthcare providers. PROMs provide valuable insights into patients’ health status and treatment outcomes, particularly when effectively integrated into clinical workflows through electronic health record (EHR) systems. This integration is especially important in the management of chronic diseases, which require sustained and coordinated patient-centred care where significant gaps remain. Embedding PROMs within EHR systems may help scale MBC for chronic disease management by transforming patient-reported data into actionable information within clinical practice. The impact of this integration on clinical outcomes in patients with chronic illnesses remains unclear. The objective of this systematic review is to identify and summarise evidence of the impact of the collection and clinical integration of PROMs through the EHR on clinical care outcomes in chronically ill patients. The findings of this review will inform and guide the future implementation of PROMs in routine clinical care using EHRs.
Methods and analysis
The research team will search MEDLINE (OVID), Embase (OVID), CINAHL (EBSCO), APA PsycInfo (OVID), Cochrane Library (Wiley), Scopus (Elsevier) and Web of Science (Clarivate). Two pairs of reviewers will independently screen studies based on inclusion and exclusion criteria, with disagreements resolved by the third reviewer. Another two pairs of reviewers will extract data from the articles that will be synthesised narratively, summarised in tabular form and categorised according to the framework for individual-level clinical outcomes. The quality of the studies will be evaluated based on the Mixed Methods Appraisal Tool.
Ethics and dissemination
Ethics approval is not required as the proposed systematic review will synthesise data from published research. The results of this review will be disseminated through academic peer-reviewed journals and conference presentations.
PROSPERO registration number
CRD420261297619.