P-82: A Patient-Centered educational intervention for youth with type 1 diabetes
H Hamad Timeny de Carvalho, C Ramos de Oliveira, R M Mendonça Anacleto, J A Cardoso de Moraes, M M Dantas de Amorim, V Varela Soares, Q Targino Rodrigues Simões, J Cavalcanti de Oliveira, D Alencar de Menezes AthaydeAbstract
Introduction
Type 1 diabetes (T1D) in childhood and adolescence requires continuous education and psychosocial support. However, traditional educational approaches often fail to address behavioral and emotional challenges, highlighting the need for patient-centered, innovative strategies.
Objectives
To describe the development of engaging educational materials for children and adolescents with type 1 diabetes, based on real-life experiences.
Methods
This descriptive study was based on a university extension project conducted at a pediatric endocrinology clinic in Brazil. Educational materials were developed from interactions with patients and caregivers using an exploratory qualitative approach, enabling identification of needs and challenges related to T1D management. Emerging themes were discussed in interdisciplinary meetings, guiding material development.
Results
The findings revealed difficulties in the daily T1D management, particularly related to understanding of hypoglycemia and treatment adherence, guiding patient-centered educational strategies. Engaging materials were developed, including original songs with diabetes-related themes, educational games, and a coloring book depicting everyday situations of children with T1D. These resources were used in the outpatient clinic waiting room, transforming the environment into a more welcoming, interactive, and less stigmatizing space. Greater engagement among children and improved acceptance of clinic visits were observed, fostering closer relationships with the healthcare team and enhancing the educational process. The interdisciplinary approach helped tailor content to real needs of the healthcare setting.
Conclusions
Low-cost, patient-centered, play-based educational interventions are feasible and effective in improving engagement and care experience among youth with type 1 diabetes, with potential for implementation in similar outpatient settings.