P-378: Patient voices: the realities of type one diabetes in Kenya
C LewisAbstract
Introduction
Living with type one diabetes in Kenya is demanding, with young adults facing severe medical, economic, and social barriers including costly insulin, poor storage, limited monitoring, and stigma.
Objectives
This study aimed to explore the lived experiences of individuals with type one diabetes in Kenya, focusing on the medical, economic, and social realities that shape daily management. It sought to identify recurring challenges, coping mechanisms, and systemic gaps in care to inform policy and advocacy efforts.
Methods
Participants were recruited through diabetes support groups, clinics, and community networks. Semi-structured interviews captured personal narratives of daily struggles, coping strategies, and healthcare interactions. Transcripts were analyzed thematically to identify recurring patterns and unique experiences. Ethical approval and informed consent were obtained to ensure participant safety and confidentiality.
Results
Twenty individuals (12 female, 8 male), aged 16–30 years, with 2–10 years of diabetes experience, were interviewed. Three major themes emerged:
1
. Insulin storage challenges – Lack of refrigeration compromised insulin potency, increasing complications.
2
. Access to monitoring tools – Glucometers and test strips were costly and often unavailable, limiting glycemic control.
3
. Social and psychological burdens – Insufficient education fueled stigma and discrimination in schools, workplaces, and public spaces. Participants reported relationship difficulties, stress, and mental health struggle
Conclusions
Young adults with type one diabetes in Kenya face intertwined medical, economic, and social barriers. Urgent policy action is needed to improve insulin access, subsidize monitoring tools, and expand public education. Integrating psychosocial support into care is essential for resilience and quality of life. A holistic, context-sensitive approach is critical to addressing the challenges of diabetes management in low-income settings.