P-326: Baseline clinical and demographic characteristics of pediatric diabetes in Canada: initial findings from the capacity registry
S Amed, M Nakhla, J Von Oettingen, I Zenlea, E Moreau, D Pacaud, C Huang, M Henderson, M Doulla, M MacDonald, M Gibbon, C PelletierAbstract
Introduction
Canada lacks a unified pediatric diabetes registry, limiting the evaluation of care disparities and technology access. In 2026, the CAPACITY registry was launched with five Canadian centers to integrate person-centered clinical data nationwide.
Objectives
To report the baseline demographic and clinical characteristics of the initial CAPACITY cohort following its multi-center launch.
Methods
CAPACITY employs a federated data architecture, enabling central data harmonization while maintaining local privacy control. This observational study used electronic medical record (EMR) data from 5 Canadian pediatric diabetes centers (2004–2025). Descriptive statistics (means ± SD, proportions) were used to analyze demographics across patients (4,984) and technology utilization, and glycemic outcomes (hemoglobin A1C (A1C), Time in Range (TIR)) across clinical visits (45,809).
Results
The age range was 0-24 years, 47.1% (N=4980) were female, and 74.5%, 5.8%, 5.1%, and 17.1% (N=2217) of youth identified as White, Black, South Asian and Other, respectively. Rates of technology utilization were high for continuous glucose monitors (CGM) (88.7%) but sub-optimal for insulin pump usage (44.2%). Mean A1C across all visits was 8.19 ±1.52%, with only 18.2% (N=34886) of youth achieving the target A1C of <7.0%. Similarly, mean TIR was 50% ± 19.97, well below consensus guidelines, and only 15.9% (N=10,956) of visits recorded a TIR >70%. 41% (N=27,740) of the cohort was overweight (17.7%) or obese (23.2%). 43% of youth presented with diabetic ketoacidosis (DKA) at diagnosis.
Conclusions
The CAPACITY registry showed despite high CGM adoption, insulin pump usage was suboptimal and most children with diabetes were not achieving target glycemic or weight outcomes. A future registry iteration will integrate data from more Canadian centers.