North American centre perspectives about a multi-institutional paediatric exercise network registry

Abstract

Fifty-three North American clinical paediatric exercise laboratories were surveyed about developing a clinical paediatric exercise laboratory network and registry. Most clinical paediatric exercise laboratories (83.0%) expressed interest in joining an exercise registry, and 73.1% reported willingness to modify protocols for standardised data collection. Clinical paediatric exercise laboratories reported potential registry benefits: CHD outcomes research, clinical paediatric exercise laboratory standardisation and accreditation; potential challenges: data entry burden, protocol selection restriction, and leadership support.