N26 Factors associated with Inflammatory Bowel Disease (IBD) helpline (HL) utilisation: Crohn’s Colitis Cure Data Insight’s Program
C Davidson, W K Su, W Wilson, C Rivas, S Antoniades, G Wark, H Su, S Ghaly, R Grafton, J M Andrews, S J ConnorAbstract
Background
Specialised IBD nurse-led HLs are essential to improve healthcare outcomes through the provision of timely support, proactive symptom, and disease management as well as remote medication management. This study explored patient, disease, and treatment characteristics to understand whether there are specific drivers of HL use.
Methods
Crohn’s Colitis Care (CCCare) is a cloud-based IBD-specific electronic medical record used in Australia and New Zealand. It includes a ‘HL’ tab to enable specific HL encounter documentation. De-identified data feeds into a clinical quality registry (CQR). HL-associated data prospectively entered during clinical practice from September 2023 to September 2024 were retrospectively analysed. Multivariate analysis was performed with a negative binomial regression model to investigate significant predictors influencing HL utilisation.
Results
During the 12-month period, there were a total of 10,705 contacts in a cohort of 7506 eligible people (1.4 per person (pp)), of which 8082 (75.5%) were emails and 2623 (24.5%) telephone calls. People with Crohn’s disease on average had more HL contacts than ulcerative colitis and IBDU (1.6pp vs 1.2pp vs 1.2pp respectively). See Table 1 for details.
People currently on an advanced therapy were more likely to use the HL (OR 2.3, [95% CI 0.51 to 1.13], P<0.001) compared to those who were not receiving an advanced therapy. By contrast, those residing in New Zealand were less likely to use the HL than those residing in Australia (OR 0.2, 95% CI [-2.3 to -1.0], P<0.001), as were people with composite endoscopic and radiologic remission compared to those not in remission (OR 0.8, 95% CI [-0.55 to -0.0002], P<0.05).
Conclusion
As expected, individual’s requiring complex care (on advanced therapy or not in endoscopic and radiologic remission) warrant more frequent contact with healthcare providers. A helpline bridges the gap between IBD services and the community and likely enhances positive outcomes for this population.