DOI: 10.1002/hed.70526 ISSN: 1043-3074

Lymphoedema in Head and Neck Cancer Survivors: Healthcare Professionals' Perspectives

Kadriye Yusra Sert, Purnima Sundaresan, Emma Charters, Rebecca Venchiarutti, Chindhu Shunmuga Sundaram, Melissa Thorne, Haryana M. Dhillon

ABSTRACT

Introduction

Improvements in head and neck cancer (HNC) treatment have increased survival rates, resulting in survivors living with side effects, such as head and neck lymphoedema (HNL). We aimed to document healthcare professionals' perceptions of HNL, approaches to managing HNL, and integration of HNL management into routine practice in Australia and New Zealand.

Methods

We conducted an online, 51‐item survey between February and October 2024. The survey comprised two main sections: (i) all healthcare professionals working with HNC and HNL; and (ii) only HNL therapists.

Results

Participants included in the analysis of the (i) HNC healthcare professionals section ( n  = 73/113), and (ii) HNL therapists section ( n  = 40/46). 45% ( n  = 33/73) of the participants reported not having access to a specialized multidisciplinary team for HNL management. 55% ( n  = 22/40) of HNL therapists reported not having standardized institutional lymphoedema management protocols.

Conclusions

Findings highlight the need for system‐level guidelines, clearer pathways, improved education resources, and coordinated MDTs to improve HNL management.

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