DOI: 10.1192/bjp.2026.10832 ISSN: 0007-1250

Learning from deaths to improve lives: why England still needs a national LeDeR programme

Rohit Shankar, Samuel J. Tromans, Jana de Villiers, Bhathika Perera, Rory Sheehan, Indermeet Sawhney, Regi T. Alexander, Ashok Roy, Richard A. Laugharne, Jacqui Shurlock, Vivien Cooper, Matthew Hill, Jackie O’Sullivan, Sheila Hollins, Andre Strydom

Summary

The National Health Service England’s Learning from Lives and Deaths of People with a Learning Disability and Autistic People programme is the world’s only national mortality review system for people with intellectual disability. Abandoning national mortality surveillance risks making preventable deaths less visible, with profound consequences for equity in healthcare.

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