Implementation of the EUonQoL-Kit
K Rolid, S KaasaAbstract
Background
For the EUonQoL-Kit to be adopted in practice, it must undergo a structured implementation process. Implementation is complex, and the EUonQoL project has therefore chosen to apply different approaches to promote the use of the Kit beyond the end of the project.
Methods
The implementation strategy consists of three main elements: 1. The development of the EUonQoL Implementation Guideline (EUonQoL IG); 2. The development of video materials for promotion and education; 3. Dissemination and exploitation. The development of the EUonQoL IG is made possible through a comprehensive and iterative feedback collection and adjustment process. The process involves active engagement with stakeholders within the EUonQoL consortium, National Cancer Mission Hubs, EUonQoL Advisory Board, and other policymakers, clinicians, researchers, and patient representatives.
Results
Throughout the iterative development of the various products designed to support implementation, several cross‑cutting considerations emerged as relevant and are specifically addressed: - What: an introduction consisting of an explanation of the EUonQoL project and the EUonQoL-Kit; - Why: the rationale for measuring quality of life and the implementation of the EUonQoL-Kit; - How: practical step by step introduction into collecting patient-reported outcomes including data management, ethics, reporting, and interpretation of quality of life indicators in general, and for the EUonQoL-Kit in particular; use of the EUonQoL Survey Hub. A two-pager has been developed providing an initial overview and understanding of the EUonQoL project.
Conclusions
The EUonQoL IG and the educational promotional materials developed are key to scaling up the adoption of the toolkit. The shift toward data-driven, population-level quality of life data collection will be a cornerstone in establishing person-centred oncology throughout the EU.