ID #641 The Historical Journey of Pediatric Neuro-Oncology Nursing and Its Global Impact
Cynthia Schmus, Ashley Meyer, Shannon Raber, Concetta DiDomenico, Michele McHugh, Micah Higgins, Kaaren Waters, Kasey Rangan, Kenneth Seidl, Allison GalkowskiAbstract
Background
Pediatric neuro-oncology is a highly specialized discipline continually shaped by advances in research, science, and interdisciplinary collaboration. Pediatric neuro-oncology nursing plays a pivotal role in translating these advances into clinical practice and is uniquely positioned to lead and participate in global collaborations.
Methods
The structure, scope, and growth of key professional organizations and collaborative disciplines demonstrating the footprint of pediatric neuro-oncology were explored. These include: Advanced Practice Provider Nurse Investigator Committee (APPNIC) within the Pediatric Neuro-oncology Consortium (PNOC), Association of Pediatric Hematology Oncology Nurses (APHON), and Children’s Oncology Group (COG). Metrics of interest include membership growth, nursing representation within research consortia, scholarly contributions, and integration of the nursing role in clinical trial development.
Results
Engagement and collaboration with our international colleagues foster the sharing of evidence-based practices, diverse delivery care experiences and innovative approaches. The result of professional networking (APPNIC, APHON, COG CNS) specific to neuro-oncology increases research initiatives, strengthens leadership, and amplifies the nursing voice in delivering culturally informed, family-centered care worldwide. Particular attention was given to PNOC as it has seen immense growth from its first planning meeting in 2012 to over forty-two open trials in 2026, incorporating nursing involvement in protocol development, implementation, and family support on a global scale.
Conclusions
By exploring our history, and understanding our current impact, the goal is universal: improved outcomes for children with central nervous system tumors worldwide. Through shared learning in addition to participation on clinical trials and nursing committees, nurses have strengthened study compliance, enhanced symptom management, and promoted consistent standards of supportive care practices.