DOI: 10.2217/frd-2023-0026 ISSN: 2399-5262
Creld1 Warriors: arming parents with the support they need
Adam Clatworthy- General Medicine
Adam Clatworthy, a communications professional at a technology firm, talks about the importance of parents and patients – who are experts in the complex conditions and symptoms of rare diseases that they live with – working together with clinicians to help deliver diagnoses.