DOI: 10.1093/ced/llag345 ISSN: 0307-6938

“I just wanted an answer”: a patient's experience of Brunsting-Perry cicatricial pemphigoid

Olwyn Conlon, Karen Eustace

This patient perspective describes the journey to a diagnosis of Brunsting-Perry cicatricial pemphigoid, illustrating the profound physical and psychological burden of living with an unexplained scalp disease. The accompanying clinician commentary highlights the diagnostic challenges of this rare condition and the importance of repeated clinicopathological correlation, including direct immunofluorescence, in establishing the diagnosis.

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