From Methodological Challenges to Recommendations for Future Practice: Lessons From an Ethnographic Study With People With Intellectual Disabilities
Karina Nissen Frøkjær, Siri Lygum Voldbjerg, Tine Fristrup, Philippa Rasmussen, Mette Grønkjær, Helle Haslund‐ThomsenABSTRACT
Background
Methodological, social and ethical challenges embedded in qualitative research with people with intellectual disabilities call for innovation and approaches that amplify their voices. This paper aims to offer methodological recommendations based on a critical reflection and discussion of the challenges involved in conducting qualitative and inclusive research with people with intellectual disabilities. It focuses on challenges related to inclusion, obtaining consent, conducting participant observations and individual interviews and involvement through an expert panel including people with intellectual disabilities.
Method
Inclusive research and critical disability studies inspired the analytical lens applied in the discussion.
Results
Researchers are advised to adapt and tailor research methods. This may involve adopting an inclusive approach, establishing prior familiarity, applying multimodal strategies or alternative methods to verbally dominated approaches, such as the sensory‐dialogical approach.
Conclusion
This paper contributes to existing research methodologies; however, substantial challenges remain and future methodological developments are needed.