Exploring the Emotional Experiences of Caregivers of Children With Tic Disorders: A Qualitative Study
Qianqian Zhang, Shujing Tan, Yuanyuan Wang, Hao Sun, Jinmei Yuan, Haosen Pan, Ankai Chen, Maoyun MiaoBackground
Caregivers of children with tic disorders experience substantial psychological and social burdens; however, existing research is predominantly cross-sectional, and their lived emotional experiences remain insufficiently explored through qualitative approaches.
Objective
This study aimed to explore the emotional experiences of primary caregivers of children with tic disorders throughout the caregiving process.
Methods
A descriptive phenomenological design was employed. Semi-structured in-depth interviews were conducted with 13 primary caregivers recruited through purposive sampling. Data collection continued until thematic saturation was reached. Interview transcripts were analyzed using Colaizzi’s seven-step method.
Results
Three main themes emerged: multiple caregiving burdens, emotional and psychological distress, and caregiving challenges and coping strategies. Caregivers reported persistent negative emotions, including anxiety, guilt, and emotional exhaustion, which were intensified by financial strain, family conflict, and limited access to professional medical services.
Conclusion
Caregivers of children with tic disorders experience considerable caregiving burdens and psychological distress, which may hinder both caregiver well-being and the child’s rehabilitation. Strengthening psychological support systems and improving access to professional healthcare resources are essential to address caregivers’ multifaceted needs.