Exploring key stakeholder perceptions on the impact of younger stroke: a multinational, qualitative interview study
Oisín Cleary, Jenny Davison, Orla McBride, Niamh KennedyObjectives
To explore the impact of stroke on young survivors.
Design
Qualitative study design using semistructured interviews that underwent thematic analysis.
Setting
Participants were recruited globally, with the majority of data collection occurring in the UK. All participant interviews were conducted online.
Participants
This study is the first to explore the poststroke impact of young stroke survivors across three key stakeholder groups: young stroke survivors (n=22), young stroke caregivers (n=5) and stroke healthcare professionals (n=9).
Results
Following 36 participant interviews, four primary themes emerged: (1) relationships and psychosocial considerations; (2) disrupted occupations and financial worries; (3) out of sight, out of mind and (4) acknowledgement of current healthcare practices and their efficacy. These results extend the findings from existing young stroke literature while providing multiple perspectives confirming that the impact is far-reaching, affecting caregivers, family and wider social circles.
Conclusions
Participants reported a range of poststroke impacts specific to a younger cohort. These should be considered when developing and engaging in service provision for young stroke survivors to ensure an inclusive, person-led approach that goes beyond ‘one-size-fits-all’.