Combating Medical Violence Against Deaf, DeafBlind, Blind and Partially Sighted Communities: A Community-Based Research Agenda for Canada and Abroad
Sammy Jo Johnson, Yoonmee Han, Iffath Unissa Syed, Rachel da Silveira GormanIntroduction: Globally, disabled individuals experience persistent social inequalities and health inequities, yet the health and wellbeing of Deaf, DeafBlind, blind, and partially sighted (DDBBPS) people remain profoundly under-researched and excluded from social science and health policy agendas. Existing studies narrowly focus on narratives of hearing and vision impairments within a medical model of disability, which pathologizes difference and obscures the biomedical origins of social inequalities and health inequities experienced by these groups. Methods: Drawing on critical disability studies and community-based literature, this narrative review introduces and applies the concept of medical violence to examine how systemic ableism, audism, and ocularcentrism shape DDBBPS people’s healthcare experiences. Results: We identify six interrelated manifestations of medical violence: denied interpreting services, inaccessible health communication, harmful interpersonal practices, health inequities and medical avoidance, absence of DDBBPS practitioners, and gaps in community-based care. Conclusions: These conditions reinforce a cycle of exclusion and misrepresentation, wherein DDBBPS persons are denied equitable access to healthcare and are simultaneously constructed as objects of cure rather than as knowledge holders. We argue for a community-based participatory research agenda led by and for DDBBPS communities to challenge ableist research paradigms and advance health equity.