Beyond the Scale: Patient Perceptions and Experiences of Bariatric Surgery Support—A Qualitative Analysis of the
BELONG II
Study
Cecelia L. Crawford, Laurel D. Hansell, Clarissa W. Hsu, Jessica Mogk, Silvia R. Paz, Darren D. Moore, Mayra Macias, Bhumi B. Bhakta, Debi Ellis, Cecilia Lopez, Tonce Jackson, Angela Borruso, Reggie Graves, Vincent Corralejo, Marlaine Figueroa Gray, Deborah R. Young, Adam Drewnowski, Kristina H. Lewis, Karen J. Coleman ABSTRACT
To examine surgical experiences of diverse participants with obesity who underwent bariatric surgery and interacted with nurses and physicians in the prior 2–5 years. Qualitative analysis of a prospective longitudinal cohort study to understand adult experiences of people with obesity before and after bariatric surgery. Semi‐structured interview data ( n = 68) were analysed to identify patterns in supportive practices and unmet needs of participants with obesity. Two theme categories emerged describing supportive care and care gaps. Supportive themes were Appreciation, Support, Listening, and Understanding, Impact of Classes, and Importance of Information. Care gap themes included Stigma, Bias, and Judgement Lack of Decision Support, More Than Losing Weight, Weight Bias, Lack of Support/Communication, Lack of Follow‐Up, Few Mental Health Supports, and Not Being Seen and Heard. Participants with obesity described experiences of bias, stigma, and concerns about knowledge and communication. Our study found stigma, bias, and judgement experienced by patients with obesity are barriers to bariatric care and successful outcomes. Gaps in communication, follow‐up, and mental health contributed to feelings the participants expressed of “not being seen and heard.” Active listening, transparent communication, and coordinated care were perceived by participants with obesity as essential for trust, respect, and belonging.