A Personalised Caring Approach at Home—Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review
Liselott Osberg Ferm, Margareta Karlsson, Anne Kasén, Sandra PennbrantABSTRACT
Aim
This study aimed to describe patients, relatives and nurses' experiences of specialised palliative home care.
Design
Integrated literature review.
Methods
The review was performed using the PRISMA 2020 Statement. The searches were conducted in Cinahl, PubMed and Scopus.
Results
Eighteen articles were selected. An overall theme ‘co‐creation for personalised home care’ emerged, based on three categories: ‘Safe and secure care’, ‘Care based on wishes and needs’ and ‘Relatives' caring role’. Patients, relatives and nurses' experiences showed that co‐creation was an important strategy for achieving goals and enabling patients to remain at home despite illness and limited life expectancy.
Conclusion
Co‐creation becomes a prerequisite for personalised home care and enabled through collaboration and learning between patients, relatives and nurses.
Patient or Public Contribution
This article is an overview of how patients, relatives and nurses experience care at home, supported by a specialised palliative care unit, and the result showed that co‐creation enables personalised care.