Irish mothers' experiences of providing support in decision‐making to adults with intellectual disabilities: A qualitative study
Hannah Casey, Deirdre Desmond, Laura Coffey- Pediatrics
- Pshychiatric Mental Health
Abstract
Background
Supported decision‐making may increase self‐determination among adults with intellectual disabilities by encouraging and empowering them to make decisions about their lives to the greatest extent possible. The aim of this study was to explore the perceptions and experiences of mothers of adults with intellectual disabilities in Ireland of providing support in decision‐making.
Methods
Semi‐structured interviews were conducted with seven mothers who had an adult son or daughter with an intellectual disability; transcripts were thematically analysed.
Findings
Three main themes were identified: support (family, services and routine), decision‐making (importance, ability and Capacity Act) and challenges (conflict, time, complex and enduring support needs and vulnerability).
Conclusions
The findings indicate that although mothers were supportive of the rights of their adult children with intellectual disabilities to make their own decisions, they were often hesitant to fully relinquish control in an effort to protect and guide them.